今天是5月3號,Ruby的第二個生日,算是她的重生日的13週年。今年我還快遞一個包裹給她,內容有我的第三張專輯,太空人冰淇淋,還有生日卡。
13年前,24歲的我捐了骨髓給9歲的她。從那時候到現在,我們一直都透過網路保持聯絡。她現在大二,主修物理治療。因為她最近忙著準備考試,我希望這次的驚喜可以在她休息時候讓她放鬆,聽音樂,吃個點心。
Ruby今天跟我分享恢復這13年的過程真的不容易。她那時白血癌治好了之後,過了12年又發現甲狀腺發炎。去年因為開刀把甲狀腺拿掉,也休學幾個月。Ruby說如果她媽媽那時候沒有飛來陪她,她就不會知道要怎麼度過。開刀復原之後,她就重生了第三次。
她講到這裡我聽的非常感動。我發現過了13年的時間,她一直都好珍惜每一天,絕對不把生命當作理所當然。
每一年的今天她會謝謝我還有謝謝家人的陪伴,也會被她稱呼超級英雄。但我這時候想跟他說:Ruby,你才是真正的超級英雄。
想了解更多關於骨髓捐贈請參考:http://btcscc.tzuchi.com.tw/index.php…
我去年有分享自己的骨髓捐贈故事:http://dawenmusic.com/zh/2018/05/03/我的骨髓捐贈故事/
Ruby, Happy 13th Birthsary. Health and happiness from Taipei. ❤️
13 years ago, I donated my bone marrow to a 9 year old girl. Fast forward to now, and we have become friends although we have never met in person. Ruby continues to inspire me and has changed my life as much as I have changed hers.
Last year, she was diagnosed with thyroid cancer due to radiation treatments she'd undergone as a child. Ruby shared with me how difficult it was at that time, even taking time off from college, and having her mom fly over for emotional support. Ruby ended up getting her thyroid removed and recovering completely. She considers her recovery her third 'rebirth'day.
I can't help but be so moved listening to her story today, on the anniversary of her second 'rebirth'day. Life is so precious, it certainly bears repeating. If anything, today reminds me not to take life for granted. Not for a second.
#bonemarrowawareness #bethematch #bonemarrowdonor
同時也有10000部Youtube影片,追蹤數超過2,910的網紅コバにゃんチャンネル,也在其Youtube影片中提到,...
bonemarrowdonor 在 Dawen 王大文 Facebook 的最讚貼文
今天是5月3號,Ruby的第二個生日,算是她的重生日的13週年。今年我還快遞一個包裹給她,內容有我的第三張專輯,太空人冰淇淋,還有生日卡。
13年前,24歲的我捐了骨髓給9歲的她。從那時候到現在,我們一直都透過網路保持聯絡。她現在大二,主修物理治療。因為她最近忙著準備考試,我希望這次的驚喜可以在她休息時候讓她放鬆,聽音樂,吃個點心。
Ruby今天跟我分享恢復這13年的過程真的不容易。她那時白血癌治好了之後,過了12年又發現甲狀腺發炎。去年因為開刀把甲狀腺拿掉,也休學幾個月。Ruby說如果她媽媽那時候沒有飛來陪她,她就不會知道要怎麼度過。開刀復原之後,她就重生了第三次。
她講到這裡我聽的非常感動。我發現過了13年的時間,她一直都好珍惜每一天,絕對不把生命當作理所當然。
每一年的今天她會謝謝我還有謝謝家人的陪伴,也會被她稱呼超級英雄。但我這時候想跟他說:Ruby,你才是真正的超級英雄。
想了解更多關於骨髓捐贈請參考:http://btcscc.tzuchi.com.tw/index.php…
我去年有分享自己的骨髓捐贈故事:http://dawenmusic.com/zh/2018/05/03/我的骨髓捐贈故事/
Ruby, Happy 13th Birthsary. Health and happiness from Taipei. ❤️
13 years ago, I donated my bone marrow to a 9 year old girl. Fast forward to now, and we have become friends although we have never met in person. Ruby continues to inspire me and has changed my life as much as I have changed hers.
Last year, she was diagnosed with thyroid cancer due to radiation treatments she'd undergone as a child. Ruby shared with me how difficult it was at that time, even taking time off from college, and having her mom fly over for emotional support. Ruby ended up getting her thyroid removed and recovering completely. She considers her recovery her third 'rebirth'day.
I can't help but be so moved listening to her story today, on the anniversary of her second 'rebirth'day. Life is so precious, it certainly bears repeating. If anything, today reminds me not to take life for granted. Not for a second.
#bonemarrowawareness #bethematch #bonemarrowdonor
bonemarrowdonor 在 Elva Ni倪晨曦 Facebook 的最佳解答
謝謝 @daisywong_author 發來的資料讓我對骨髓資料庫有更多的認識,年僅6歲的曉晴已經經歷了10個月的血癌化療,現在又再次復發,需要在3個月內做骨髓移植. 血病患者尋找無血緣關係的骨髓捐贈者做骨髓移植,絕不容易,只有5000份之一機會吻合,所以愈多人登記,成功配對的機會就愈大。資料只需存入一次,就會進入全球的資料庫,可以讓更多的人找到配對的機會!
*方法非常非常的簡單,只要捐血時「順便」填張form登記就可以了,也可以在紅十字會抽血登記做骨髓捐贈者。(我就是血紅素太少不能捐血,所以抽了血)
請大家多多關注與分享,如果能盡自己的綿薄之力救他人一命是多大的福報❤ #bonemarrowdonor #redcross #感恩的心 #骨髓移植 #骨髓捐贈 #紅十字會